I am pleased to share some exciting news with you. I am a 67-year-old woman with a diagnosis of SCA8, and for the first time in a long time, I feel incredibly optimistic—I truly believe I have turned things around. Each morning, I begin with a one-mile walk followed by a 30- to 45-minute strength training session. This daily routine has made a remarkable difference in my mobility. Not long ago, walking straight without difficulty was a challenge, but today, no one would ever guess that I live with Ataxia. My progress feels nothing short of remarkable, and I am convinced that fitness is a powerful tool in the fight against this debilitating disease. I wanted to share this with you because I believe it demonstrates the potential for exercise and determination to truly change outcomes.
When Were You Diagnosed? Which Type (If Known)?
SCA8 – 10 years
How Has Ataxia Impacted Your Life?
Minimal, I fight every day to reverse the symptoms.
What is One Thing You’d Like the People to Know About Ataxia?
You might have Ataxia but it doesn’t own me.
Share Your Advice – How Can Others Support Someone with Ataxia?
Network with others, stay consistent with your exercises.
Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Recent Member Stories
Tracy Britt
I am a Registered nurse who recently went on disability for Spinocerebellar Ataxia. My family tree is full of members with this same illness. I Read More…
Adam Zea
I have a beautiful wife and 3 grown kids. I have always been very active, running track and cross-country in high school and road races Read More…
Aude J
Note: Aude submitted her story in French. ChatGPT was used to translate her submission. The translation may not be accurate. We will include her submission Read More…
Sandi G
I am pleased to share some exciting news with you. I am a 67-year-old woman with a diagnosis of SCA8, and for the first time Read More…
Thomas Hudson
I’ve had balance and coordination issues my whole life – but I really started noticing it 10 years ago. I think the stress of myself Read More…
Tyler
My grandmother died prematurely from ataxia when I was just a baby, 26 years ago. Now today, my aunt has severe SCA and my mother Read More…
