Sandy Kaptain

Hi! My name is Sandy Kaptain. About 20 years ago I noticed I was having falls. Just walking around the neighborhood but also when on vacation when there were wet leaves, on rocks, and then I started keeping track of them on a calendar for 3 years. I saw that I averaged about 5 for the first year or two, then it increased to 5-10 A YEAR.

I did start seeing a neurologist who thought I might have latent MS. He did MRIs about every year or every other year for 20 years. I have had between 80-100 falls and broken both wrists, both ankle. a shoulder, and had to have neck surgery for a disc that was impinging on my spinal cord. They did a laminectomy on C4-6. Also have had 4 meniscectomies, and recovering almost from the last one that had complex tears on the medial and lateral sides of my R knee. I can walk 1.5 miles, sometimes two. But I do fight ‘goosefoot’ pain. Found out I have white matter disease, but can’t tolerate statins even in small doses. I use a cane ALL THE TIME! It is very discouraging to not know why this is happening, but white matter syndrome is part of the answer, A–G–E is another. At 76, I hope I have things under some control now.