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Guest Author: Camille Johnson Moving is one of those life events that sits at the intersection of stress and excitement, but for people living with Ataxia, it’s a different kind of math entirely. The logistics don’t just ask for planning—they demand precision. And while well-meaning friends may offer up Pinterest checklists Read More…
Guest Author: Ellie Martin Summer is here! I’ve put together a list of products that might be particularly useful during this time of year. Many of these products have been suggested and reviewed by Day Undefined, a website of everyday products for accessible living. All of the products that they Read More…
My name is Neyveth Duarte and my dad was officially diagnosed with Ataxia earlier this year. My dad is my hero and he is going through a really hard time due to his current symptoms. Growing up my dad was a very active man who played baseball for over 3 Read More…
Cooking with Troy A webinar series for confidence in the kitchen. UPCOMING SESSIONS MEET CHEF TROY PAST SESSIONS DONATE Cooking with Troy is a new webinar and live demonstration series from NAF featuring Chef Troy Stewart, a professional chef living with Gluten Ataxia. These fun, engaging sessions are designed to Read More…
I grew up in a small & rural town of about 3,500 people in central Minnesota. I was raised in a blue-collar middle class home, with both loving parents and two older brothers. I was an average athlete in high school (for a small town) playing football and baseball, and Read More…
Guest Author: Ellie Martin Seeking effective methods for healing and growth is significant for rehabilitation. Equine Assisted Therapy, a unique form of therapy that provides the connection between humans and horses to promote emotional well-being, psychological healing, and personal development is growing in popularity with significant positive results. Equine Assisted Read More…
Ataxia doesn’t wait—and neither should treatment. NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA). With an estimated 15,000 people in the U.S. affected by SCA, it’s time for decision-makers to understand the impact Read More…
Submitted by Theresa Nelson, Executive Director at Ataxia Connection It is an exciting opportunity for our organization, Ataxia Connection, to travel and attend the Annual Ataxia Conference (AAC) as a group and network with other individuals and care partners in the Ataxia community across the U.S., along with meeting the Read More…
Submitted by Mark Holdenried Attending the 2025 Annual Ataxia Conference (AAC) in Las Vegas was a meaningful and energizing experience. From the travel experience to sessions, each moment added to the feeling that we truly are not alone in this journey. Meaningful Moments and New Connections Before even boarding the Read More…
A generous family stepped forward to MATCH THE MATCH for April’s Accelerate! Double the Drive campaign. They contributed an additional $50,000 in memory of Carol Tate, whose legacy continues to inspire hope for families affected by Ataxia. We’re grateful for her family’s continued support of NAF’s mission to accelerate treatment Read More…
