I am Spanish, I am 30 years old and I am a carrier of SCA3 ataxia. My grandmother and my aunt died due to the disease and my mother uses a walker. I still have no symptoms but I have infinite concerns and curiosities about my illness.
When Were You Diagnosed? Which Type (If Known)?
SCA3. 10 years ago.
How Has Ataxia Impacted Your Life?
The impact I am suffering is the uncertainty of not knowing how ataxia is going to affect me, especially considering that I want to get pregnant and I don’t know how the disease can develop due to pregnancy hormones.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
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