I was a high school baseball coach for 25 seasons and had a successful 20 years in as the Public Address announcer for all the programs football and basketball games – both boys and girls. About five years ago, I sold my lucrative Financial Planning practice of 33 years and was looking forward to a fun filled retirement when I began to notice something was wrong. My balance was askew and I had a few cognitive issues plus my speech was impacted as well. After several exams, I was told I had MSA-C and my brain was actually shrinking. I left coaching and gave up announcing (easier said than done – I miss it all very much) cold turkey for life of reading and watching television. I’m bored. My friends say not but walk tentatively and I can hear it my speech. At times, I feel helpless.
When Were You Diagnosed? Which Type (If Known)?
Two months ago- MSA-C.
How Has Ataxia Impacted Your Life?
I can barely walk anymore and my wife does all the chores.
What is One Thing You’d Like the People to Know About Ataxia?
My wife is as trapped as I am.
Share Your Advice – How Can Others Support Someone with Ataxia?
Exercise-go for walks daily and three times a week I meet up with a support group at an MMA boxing site.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Recent Member Stories
Cameron Dingerson
My name is Cameron Dingerson, and I have a rare form of spinocerebellar ataxia: SCA11. The impetus for me sharing my story is the upcoming Read More…
Valentina
Todo empezó a los 9 años cuando estaba en el colegio y la profesora y mi mamá se empezaron a dar cuenta que levantaba los Read More…
Denny
My name is Denny and I am 71 years old living in a small town in Northern Minnesota. I have had a diagnosis of Ataxia Read More…
Liliana Haefliger
One day, about 25 years ago, I suddenly saw double after the second sip of white wine. Then I started seeing double not only when Read More…
Dušan Stojanovich
“His Light Endures”: Honoring Dušan Through Art and Advocacy By Dr. Nanette Presswell My partner Dušan was an extraordinary person—deeply creative, endlessly curious, and full Read More…
Marius
My Ataxia Journey: Sailing Uncharted Waters My name is Marius, and I live in Romania. I’m 64 years old, and I’ve always been an active, Read More…
