I was a high school baseball coach for 25 seasons and had a successful 20 years in as the Public Address announcer for all the programs football and basketball games – both boys and girls. About five years ago, I sold my lucrative Financial Planning practice of 33 years and was looking forward to a fun filled retirement when I began to notice something was wrong. My balance was askew and I had a few cognitive issues plus my speech was impacted as well. After several exams, I was told I had MSA-C and my brain was actually shrinking. I left coaching and gave up announcing (easier said than done – I miss it all very much) cold turkey for life of reading and watching television. I’m bored. My friends say not but walk tentatively and I can hear it my speech. At times, I feel helpless.
When Were You Diagnosed? Which Type (If Known)?
Two months ago- MSA-C.
How Has Ataxia Impacted Your Life?
I can barely walk anymore and my wife does all the chores.
What is One Thing You’d Like the People to Know About Ataxia?
My wife is as trapped as I am.
Share Your Advice – How Can Others Support Someone with Ataxia?
Exercise-go for walks daily and three times a week I meet up with a support group at an MMA boxing site.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Recent Member Stories

Danne Geson Winneräng
When I had my tinnitus investigated in 2007, a balance disorder was discovered. I was put in touch with a neurologist who suspected something called Read More…

Shannon
Finding Balance: My Journey to a Rare Diagnosis For years, I brushed off the dizziness, fatigue, and the way my feet sometimes seemed to have Read More…

Jorge Alonso
My name is Jorge Alonso, I am 33 years old I was diagnosed with ataxia at 31 or 30, although I really felt the disease Read More…

Abdulrahman
Hello, I’m Abdulrahman – in the beginning I was shocked, but then I digested the news, my lifestyle and way of living really helped me Read More…

Ben Williamson
Living and Dying with Spinocerebellar Ataxia Type 7: A Carer’s Perspective Affiliation: Husband and primary carer of patient with confirmed SCA7 (ATXN7 gene, 10/49 CAG Read More…

Maitreyi Viswanathan
http://youtu.be/sYccDzT25eY?si=f6GkonkY4FvsyFHy The video above is from Maitreyi’s personal YouTube channel, in which she discusses her experiences living with Ataxia. Mature topics are discussed, viewer discretion is Read More…