I have Multiple Sclerosis and Ataxia affects my walking. I never thought of Ataxia as a separate thing, but a friend has it as well. The neurologist at the hospital notice it as well as my MS Specialist.
When Were You Diagnosed? Which Type (If Known)?
2021. Not sure what type.
How Has Ataxia Impacted Your Life?
It affects my walking. I can’t run or walk long distances.
What is One Thing You’d Like the People to Know About Ataxia?
It is a part of other diagnoses.
Share Your Advice – How Can Others Support Someone with Ataxia?
Tolerate their walking slow.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Recent Member Stories
Finding Connection at the 2025 Annual Ataxia Conference
Submitted by Mark Holdenried Attending the 2025 Annual Ataxia Conference (AAC) in Las Vegas was a meaningful and energizing experience. From the travel experience to Read More…
Lim Siah Gim
My challenge and journey with Ataxia I was born youngest in a family of 11. From teen I witnessed my father (who was about 50 Read More…
Shawn Davis
Why I Wrote a Children’s Book to Explain Ataxia Well, it turns out your brain’s cerebellum is super important… A couple of years ago I Read More…
Roberta C
I am the mother of a child with SCA (type 14). My daughter who is now 12 had her first symptom when she was 5. Read More…
Ken
My Ataxia journey started some years ago. Even before I was diagnosed, my wife commented that I walked like “Tipsy Mc Staggers”, and I had Read More…
Julie Guillot
My name is Julie Guillot, and my son, John, has Ataxia. John’s journey began on January 19, 1998, just a few weeks after he was born. As Read More…
