Ataxia comes as a dominant gene through my great grandfather, Ernest, my grandmother, Ernestine, and my mother, Leslie. My mother’s brother died young and we don’t know if he had it. I am the only one of four siblings who has it. My younger brother has early Alzheimer’s at 62.
When Were You Diagnosed? Which Type (If Known)?
I was diagnosed four years ago.
How Has Ataxia Impacted Your Life?
I run into things and occasionally stumble. I tend to aspirate food from time to time. I can still walk fine at 65, but the analogy I use is that I feel like a shopping cart with a loose wheel. It has affected my balance and coordination, though I am still agile enough to do light carpentry, ski and play golf.
What is One Thing You’d Like the People to Know About Ataxia?
There are no therapies, and it gets worse as you get older.
Share Your Advice – How Can Others Support Someone with Ataxia?
Let them ask for help. Don’t assume they can’t do it if they are slow in completing some action.
How has NAF Helped You or Your Family?
My mother was a member for many years.
Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.
What is Your Ataxia Story?
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