Shaun Wesley Best

My Ataxia journey began in 1978, following a three-month coma I experienced the year before, at age 12. Since then, I’ve faced significant balance challenges and experienced over 50 falls. It took many years before I was correctly diagnosed and prescribed medication to help manage my symptoms. Despite living with a number of diagnoses which often led others to underestimate my intelligence, I’ve remained committed to advocating for accessibility and disability rights throughout my life.

I’ve served in various community and national roles—appointed by the mayor of Magnolia and supported by organizations like the National Organization on Disability and the Pilot Club Foundation—to push for compliance with the Americans with Disabilities Act. These experiences, along with my involvement in Toastmasters and as a participant in the National Disabled Veterans Winter Sports Clinic, have helped me find purpose and continue to raise awareness for those living with Ataxia and other disabilities.

When you believe, achieve, receive success you can conquer the challenges/difficulties/disabilities to full inclusion. Using the BARS to thrive, more can be successful!

When Were You Diagnosed? Which Type (If Known)?

2017.

How Has Ataxia Impacted Your Life?

Painful pains in my legs, neck, etc.

What is One Thing You’d Like the People to Know About Ataxia?

You can conquer them, slowly as myself or quickly depending on your community.

Share Your Advice – How Can Others Support Someone with Ataxia?

Affirm their recovery skills that can benefit others!

How has NAF Helped You or Your Family?

Listened to my story as God has been with myself!

Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.

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