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National Ataxia Foundation

2023 AAC


ICAR Recap Friday Morning: Recent Discoveries and Flash Talks

Written by Dr. Ronald BuijsenEdited by Celeste Suart The Late Breaking Session presented data on new insights into FA disease mechanisms and positive results in an FA omaveloxolone clinical trial, a novel SCA5 screening platform to identify new drug targets & the discovery of a novel gene causing SCA50. During Read More…

ICAR Recap Thursday Morning: The Entrepreneurs of New Treatments

Written by Dr. Jorge Diogo Da Silva, with notes from Sarah Donofrio and Celeste SuartEdited by Hayley McLoughlin From drugs and gene therapy, to electrical current and exercise programs: how researchers are becoming more innovative in the search for new treatments, in the lab models to test them, and in Read More…

ICAR Recap Wednesday Afternoon: Cerebellum, Therapy Development & Imaging

Written by Dr. Hannah Shorrock, with notes from Dr. Amy Smith-Dijak and Celeste SuartEdited by Celeste Suart Understanding non-motor functions and factors that govern vulnerability in the cerebellum will help to inform preclinical therapy development, from CRISPR to small molecules, and provides important considerations for imaging studies. Together, these research Read More…

ICAR Recap Wednesday Morning: Biomarkers & Neurons

Written by Sarah Donofrio, with notes from Dr. Hayley McLoughlinEdited by Hayley McLoughlin On Wednesday morning, ICAR attendees heard talks covering a range of topics, all  focused on research about the mechanisms and biomarkers of ataxia. Wednesday morning began with the Disease Mechanisms Plenary. The session was kicked off by Read More…

ICAR Recap Tuesday Afternoon: Partnership & Understanding Ataxia

Written by Dr. Hannah ShorrockEdited by Dr. Hayley McLoughlin Early involvement of patients in clinical trial design, developing innovative imaging techniques and leveraging a clear understanding of disease mechanisms will pave the way for clinical trial success in the ataxias. As the field of ataxia research moves towards clinical trials, Read More…

ICAR Friday Morning: Recent Discoveries and Flash Talks

Written by Ronald Buijsen Edited by Celeste Suart The Late Breaking Session presents data that are high-impact, groundbreaking, innovative, and newsworthy. This session will cover insights into FA disease mechanisms, a novel screening platform and the use of natural history data in clinical trials. After announcing the ICAR 2022 award Read More…

ICAR Thursday Afternoon: Discoveries for Potential Ataxia Treatments

Written by Dr. Amy Smith-Dijak Edited by Celeste Suart Let’s talk treatment. Thursday afternoon starts off with some debates about testing and administering new therapies. Later attendees will hear about the latest clinical trials for ataxia therapies. Work with patients? There is also a workshop on the SARA scale. Thursday Read More…

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