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National Ataxia Foundation

2023 AAC

Twin Cities Ataxia Support Group Brainstorms 2020 Programming

Author: Lori Shogren, Community Program and Services Director

It was a pleasure to attend the Twin Cities Ataxia Support Group Meeting on November 16. This was a working meeting to develop the group’s 2020 programming. It was great to see everyone participate in this process by sharing their ideas and interests. Lenore Schultz, the Support Group Leader, did an excellent job on facilitating the brainstorming process.

First, Lenore explained the 2020 calendar to the group. For 5-6 meetings throughout the year, they will not have a speaker. Instead, they will split up into two groups: those with Ataxia and those without Ataxia. The separate groups have more impactful sharing and caring time. For the other meetings, the group will have a scheduled speaker. September will not have a meeting to allow the group to focus on their Walk N’ Roll fundraiser. December’s meeting will be a holiday party. Another month may be a group outing.

After explaining the 2020 calendar, Lenore reminded the group about the topics that they had speakers for in 2019. Those topics included:

  • Current Research Developments
  • Depression, Anger, Grief, and Loss
  • Genetic Testing
  • Coping with Ataxia

The group was then asked what topics they were interested in finding a speaker for. The group shared their interest in hearing about the following topics:

  • Adaptive Recreation
  • Research Updates
  • Adaptive Travel
  • Employment, Employment Accommodations, SSDI
  • What “Can” We Do – Discussion
  • Medical Cannabis
  • Relationships
  • Fall Prevention
  • Exercise or Alternative Exercise (Tai Chi, Yoga)
  • Nutrition
After collecting all these great ideas, the group voted to determine the topics with the most interest. The group voted to pursue securing speakers for the following topics:
  • Adaptive Recreation
  • Employment, Employment Accommodations, SSDI
  • Relationships
  • Exercise or Alternative Exercise (Tai Chi, Yoga)
  • Nutrition

Contact Lenore Healey Schultz for more information about the Twin Cities Ataxia Support Group

Phone: 612-724-3784

Not from the Twin Cities Area?

Find a support group in your area.

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