My grandmother died prematurely from ataxia when I was just a baby, 26 years ago. Now today, my aunt has severe SCA and my mother is also starting to show symptoms. I also am very concerned for my cousin, my brother, my sister, and myself; not to mention, my newborn nephew who may develop it later in his life.
When Were You Diagnosed? Which Type (If Known)?
My aunt was diagnosed two years ago with the onset of symptoms. My mother has not yet been officially diagnosed. SCA.
How Has Ataxia Impacted Your Life?
I did not think I was at risk for this disease; it was a held belief in our family that it only affected women. But that’s not the case, of course. So now my wife and I are anticipating a future where she will have to take care of me. But we already plan to take care of my mom, AND we take care of my wife’s sister who was born severely premature and profoundly developmentally disabled.
Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.
What is Your Ataxia Story?
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