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Ataxia doesn’t wait—and neither should treatment. NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia Read More…
Submitted by Theresa Nelson, Executive Director at Ataxia Connection It is an exciting opportunity for our organization, Ataxia Connection, to travel and attend the Annual Ataxia Conference (AAC) as a Read More…
If you’ve ever felt overwhelmed trying to understand complex medical research, you’re not alone. That’s why SCAsource was created—to make Ataxia research accessible to everyone. What is SCAsource? SCAsource is Read More…
Guest Author: Shannon Dunphy Lazo, St. Louis Ataxia Support Group Leader We’re excited to share something new from the St. Louis Support Group—and yes, we’re bragging just a little! In Read More…
Submitted by Mark Holdenried Attending the 2025 Annual Ataxia Conference (AAC) in Las Vegas was a meaningful and energizing experience. From the travel experience to sessions, each moment added to Read More…
A generous family stepped forward to MATCH THE MATCH for April’s Accelerate! Double the Drive campaign. They contributed an additional $50,000 in memory of Carol Tate, whose legacy continues to Read More…
My challenge and journey with Ataxia I was born youngest in a family of 11. From teen I witnessed my father (who was about 50 at the time), physical conditions Read More…
Thank you for 15 Years of Chuck and Duck! We guarantee you will get a kick out of this! For the15th year, Charlton Heights Elementary School participants came together to celebrate Read More…
Why I Wrote a Children’s Book to Explain Ataxia Well, it turns out your brain’s cerebellum is super important… A couple of years ago I found out that mine was Read More…
I am the mother of a child with SCA (type 14). My daughter who is now 12 had her first symptom when she was 5. She had a vision through Read More…
