Join our free Let’s Move Exercise Program! Accessible, expert-led virtual sessions to help you build strength and improve balance from home. REGISTER
Thank you to everyone who joined our State of NAF webinar. It was an opportunity to reflect on where we’ve been, where we’re headed, and how the voices of the Ataxia community continue to shape our path forward. During the webinar, we announced a transformative gift from an anonymous donor Read More…
I have a beautiful wife and 3 grown kids. I have always been very active, running track and cross-country in high school and road races in my early and latter years, I have always loved to run. I worked in the produce dept for a grocery chain for almost 36 Read More…
What is a variant? The human genome contains over 3 billion base pairs– individual “letters” in the DNA code that make the instructions for our cells and bodies to function. A variant or mutation is any change in this code. These changes can be passed down from our biological parents Read More…
Note: Aude submitted her story in French. ChatGPT was used to translate her submission. The translation may not be accurate. We will include her submission in French, followed by the English translation in italics. Bonjour à tous je viens d être diagnostiquée pour la maladie de Canvas la semaine dernière Read More…
I am pleased to share some exciting news with you. I am a 67-year-old woman with a diagnosis of SCA8, and for the first time in a long time, I feel incredibly optimistic—I truly believe I have turned things around. Each morning, I begin with a one-mile walk followed by Read More…
I’ve had balance and coordination issues my whole life – but I really started noticing it 10 years ago. I think the stress of myself going back to college (Bachelor’s Degree) is what kicked the symptoms off. I work a semi-desk job (IT Support) but it’s tougher when I have Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: The functional domains of a1ACT and Read More…
My grandmother died prematurely from ataxia when I was just a baby, 26 years ago. Now today, my aunt has severe SCA and my mother is also starting to show symptoms. I also am very concerned for my cousin, my brother, my sister, and myself; not to mention, my newborn Read More…
My paternal grandfather had a wide gait and difficulty walking and talking. We were told it was like “hardening of the arteries in the brain.” He started showing signs in his 60s. His father had the same condition. An autopsy on my grandfather showed he had OPCA (Olivopontocerebellar Ataxia). My Read More…
A Wheelchair is Not The Endgame By Pinalben “Pinky” Patel I’m sorry, but I don’t consider wheelchair users disabled. I am a very happy person – there are only a few things I despise in life. And one of them is the comment, “She’s in a wheelchair just like you Read More…
