ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
What does a placebo mean? A placebo is a simulated substance that has no therapeutic effect or active ingredients. Often, a placebo looks, feels, and tastes like other therapies being tested in the clinical trial. What is the placebo effect, and why is it important? https://www.youtube.com/watch?v=5RhG_ySxhDA Why are placebo-controlled trials Read More…
Author: Sue Hagen, Research Services Director I recently attended the virtual annual meeting of the Drug Information Association. I took in four days of sessions, all relating to topics of interest to all stakeholders involved in drug discovery and development. My head is still spinning! While you would think that Read More…
What is an Informed Consent Form (ICF)? Informed Consent Forms are important aspect of a clinical trial. An ICF is a document that provides a potential clinical trial participant information about the clinical trial and any risks there may be in participating. The goal behind the ICF is to present Read More…
NAF is committed to providing the resources to fund research needed to develop treatments and therapies for people with Ataxia. We fund research studies ranging from $35,000-$100,000 per study. We are accepting Letters of Intent for research grants through late September and early October on proposalCENTRAL. For more information visit www.ataxia.org/researcher-resources. If you Read More…
Guest Authors: Drs. Paulson, Ashizawa, and Öz Right now, it’s an exciting time in the Ataxia field. Many companies are working rapidly to bring therapies to the clinic for the Spinocerebellar Ataxias (SCAs). Unfortunately, however, we still need to know more about the natural history of SCA and relevant biomarkers Read More…
Author: Sue Hagen, Research Services Director In the 14 years that I have been on staff at the National Ataxia Foundation, I have heard many times that clinical trials for therapy development for Ataxia will start within the next 5 years. And I have seen the Ataxia community patiently and Read More…
Guest Author: Sam Kirton, NAF Board of Directors President Fighting Ataxia is a cause that is close to Sam Kirton’s heart. He lost several family members to the disease. He volunteers his time to help make sure that NAF continues to move boldly forward, championing efforts to accelerate development of Read More…
Let’s have some fun with the Summer Match Challenge! Thanks to an NAF supporter, we have a $100 VISA Gift Card to give away at the end of the month! We’ll start each week with a new challenge. Complete the challenge to receive an entry into the drawing for the Read More…
Author: Joel Sutherland, Director of Development Pictured above: Hikers in the 2021 Country Skies Extreme Hike for Ataxia The participants in the 2021 Country Skies Xtreme Hike were soaked and worn out as they did their best to deal with the wet conditions Mother Nature delivered on Saturday, April 24th Read More…
We are excited to announce the return of the Summer Match Challenge! This event is always one of the most celebrated and popular fundraising activities of the year. The Michael and Patricia Clementz-Peterson Family Fund has again committed to matching all funds contributed up to $100,000! Their generosity and commitment Read More…
