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A Life of Resilience: Kamal Ansari’s Journey with Ataxia Kamal Ansari gazed out of the window, the sun casting long shadows over his garden. At 72, he had seen more than most could imagine, and his journey had been one of perseverance and resilience. Born in Pakistan, Kamal had served Read More…
My journey to diagnosis of Spinocerebellar Ataxia has not been an easy one. There had been plenty of sleepless nights as I allowed my mind to wonder and play the “what if” game. I tried hard not to get caught up in all of the chaos , but there was Read More…
Hello..My name is Jean Marc Roy. I am married with two adult children and a grandson. I also have five siblings. I’m 62 years old. In 2013 I had a mining accident and ended up having three operations on my back which resulted with severe drop foot. I have severe Read More…
On my 50th birthday my son and I rode bikes across the state of Kentucky. I did this 7 times before I turned 60. I have always been very active hiking, running, gym, cycling and basically anything to challenge me and contribute to health. I am now 68 and just Read More…
I’m a wheelchair user and have been for the last 10 years. I was diagnosed with Acute Myeloid Leukemia in 2010, my doctor identified me as having the flit 3 gene which makes leukemia tough to beat without a bone marrow transplant. In the beginning of 2012 I had my Read More…
My start with this condition began at the age of 16, when I started to lose my balance and got a drunken gait. Over time, I lost my reflexes, my muscle strength began to decrease, and my muscles atrophied. The family doctor sent me to an ENT consultation, then at Read More…
Hi! My name is Sandy Kaptain. About 20 years ago I noticed I was having falls. Just walking around the neighborhood but also when on vacation when there were wet leaves, on rocks, and then I started keeping track of them on a calendar for 3 years. I saw that Read More…
I have Spinocerebellar Ataxia type 2. Also known as SCA2. I was 47 years old when I was diagnosed. I already knew that I had it, because I have a family history of it. My mom had it, her mother had it, my mom’s sisters and one brother all had Read More…
Chapter 1: In the beginning I wasn’t always this way. Growing up the daughter of a military man I can honestly say red, white and blue run through my veins. I love America and my family for years has fought vehemently for this glorious country. Allow me to say here Read More…
My name is Anna Santoro and I am the stay-at-home mom of three boys and the primary caretaker to my mom, who has Ataxia type two. My objective is to share our Ataxia story, raise awareness, and provide other caregivers like myself with management tools to help care for their Read More…
