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The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE

NAF

NAF Welcomes Four New Board Members

As a non-profit organization, NAF’s strategic vision is lead by our Board of Directors. They are a dynamic group of individuals that volunteer their time and resources to guide NAF towards its mission of accelerating the development of treatments and a cure while working to improve the lives of those Read More…

Protect Yourself from Scams on Social Media

The NAF Facebook Group was established as a support group and social network for people with Ataxia, including their families, friends, caregivers, and anyone affected by Ataxia. With any social network, there is a risk of encountering scammers and spammers. We’d like to provide you with some information about how Read More…

NAF is Accepting Applications for the Diverse Scientists Grant

NAF is now accepting applications for the Diverse Scientists in Ataxia Pre-Doctoral Research Fellowship. Applications must be submitted via proposalCentral by March 28, 2022. This award provides partial support for study and research and may be used to support pre-doctoral students who are pursuing dissertation research with an Ataxia-relevant theme. This is a two-year $50,000 Read More…

NAF is Piloting a Free Genetic Counseling and Testing Initiative

NAF is excited to announce that we are beginning a feasibility study of a program to remove barriers to genetic counseling and testing. Eligible participants will receive genetic counseling at no-cost to them. After counseling, if the participant and genetic counselor determine that testing is the right decision, genetic testing Read More…

National Ataxia Foundation

Now Hiring Database Manager

The National Ataxia Foundation, a patient advocacy organization for a rare brain disease, is looking for an ambitious, detail-oriented, and fun-to-work-with Database Manager / Development Associate with a passion for helping others.  This exciting role is new for NAF and will be instrumental in cultivating and expanding our donor and Read More…

NAF Announces New CSO

After an extensive national search with many highly qualified candidates, we are excited to announce NAF’s very first Chief Scientific Officer! We’d like to extend a warm welcome to Lauren Moore, PhD. She stood out for her outstanding scientific knowledge, passion for serving the Ataxia community, and commitment to NAF’s Read More…

2022 AAC Goes Virtual

The health and safety of our community is our number one priority at NAF. We wanted to let you know that we are pivoting to a completely virtual 2022 Annual Ataxia Conference. We will no longer offer an in-person option. While we’re very disappointed that we do not get to Read More…

Highlighted Researcher: Felicia Williams

NAF is proud to feature Felicia Williams as a recipient of NAF’s 2020 Diverse Scientists in Ataxia Pre-Doctoral Research Fellowship. Felicia developed a new method to identify genes that suppress protein clumping.  Bio: Felicia Williams graduated from the University of Georgia in 2019 where she studied genetics and biotechnology. Here Read More…

National Ataxia Foundation

NAF Begins Search for Chief Scientific Officer

We’re excited to announce the launch of a search for NAF’s first Chief Scientific Officer. This exciting role is new for NAF and will be instrumental in shaping our research funding strategy and deepening our rapidly expanding partnerships in the pharmaceutical space. The Ataxia community is at a pivotal moment Read More…

2021 United Against Ataxia Hill Day

NAF, FARA, and more than 100 volunteer advocates will come together to raise awareness about Ataxia and supporting legislation that directly impacts our community.  The third United Against Ataxia Hill Day will be held on Wednesday, September 29, 2021. Ataxia advocates will speak to their Congressional Members to make the Read More…

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