I was diagnosed with SCA1 in 2010, five years ago I had to stop work due to it becoming too hazardous, I lost my ability to do everyday tasks like washing my car or cleaning the gutters, I cannot print or write anymore, sometimes my ability to sleep is compromises, my depth perception is gone, it is very hard to navigate stairs, my balance is gone, sometimes my speech is garbled, eating with a fork or spoon is hard, the same goes for drinking, I have had to give up my hobbies reflexes are very slow.
When Were You Diagnosed? Which Type (If Known)?
SCA1 in 2010
How Has Ataxia Impacted Your Life?
Five years ago, I had to stop working because it was becoming unsafe.
What is One Thing You’d Like the People to Know About Ataxia?
It causes behavioral changes each and every day, no two days are the same.
Share Your Advice – How Can Others Support Someone with Ataxia?
Be patient, due to these changes caused by SCA1 it takes me longer to do certain things.
How has NAF Helped You or Your Family?
This is the first time I have gone on this site, I hope to bring awareness of this disease.
Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.
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