In June 2024, I had a massive hemorrhagic stroke caused by an AVM. I was 23 at the time and working out at the gym. The next 6 months I spent my time in hospitals and rehab. I continue rehab to this day. A little better everyday.
When Were You Diagnosed? Which Type (If Known)?
I was diagnosed in July 2024 with Cerebellar Ataxia caused by a stroke.
How Has Ataxia Impacted Your Life?
It makes literally everything harder.
What is One Thing You’d Like the People to Know About Ataxia?
Patience is everything.
Share Your Advice – How Can Others Support Someone with Ataxia?
Just be patient. The person with Ataxia and doesn’t mean it.
How has NAF Helped You or Your Family?
It helps me not feel alone.
Disclaimer: The views and opinions expressed in this story are those of the individual member and do not necessarily reflect the views of the National Ataxia Foundation (NAF). Any medical information shared in this story is based on personal experience and has not been reviewed or endorsed by NAF or a medical professional. Always consult with your own physician or qualified healthcare provider before making any changes to your care or treatment plan.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
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