Please join us for the fourth United Against Ataxia Hill Day on September 21, 2022. Ataxia advocates will speak to their Congressional Members. All meetings will be virtual and run approximately 15-30 minutes in duration. You will be assigned 2-5 meetings between 9am and 5pm.
Your Congressional Members need to hear from you to fully understand what Ataxia is and what legislative action is needed! Join us in raising awareness about Ataxia, research funding needed, and ways to expedite treatments. The power to create change starts with you! Sign up to be a part of Hill Day below.
Feel free to post on social media to support these efforts using #AtaxiaHillDay.
Register to be an Ataxia Advocate on Hill Day
We need all the help we can get! Sign up today to make a difference.
Registration requires two steps:
- Sign up to participate in Hill Day – Register Now
- Register for the required one-hour training. Training will be on August 10th at 7pm ET. – Register Now
Important! Your Congressional meetings will not be scheduled until you complete the training.
If you cannot attend the training on August 10, or if you have other questions, contact Lori Shogren at lori@ataxia.org or Brigid Brennan at brigid.brennan@curefa.org.
Read Other Advocacy News
Community Response Regarding Troriluzole Delivered to FDA
Last month we asked for your feedback about the FDA’s decision to refuse to file Biohaven’s NDA for troriluzole. More than 3,000 people stepped up to make their voices heard! Read More…
Tell Us Why You Think Ataxia Deserves Regulatory Flexibility
Thank you for submitting your comments for the FDA! NAF gathered feedback from the Ataxia community to submit to the FDA. We’re concerned with the FDA’s decision to refuse to Read More…
Advocating for Ataxia: My Virtual Experience on Hill Day
Author: Mark Hazlin, NAF Board Member In 2021, as I logged into the virtual platform for the National Ataxia Foundation (NAF) Hill Day for the first time, I was nervous. Read More…
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Unraveling Ancestry: Mary Hogan’s Journey
Tell Us Why You Think Ataxia Deserves Regulatory Flexibility
NAF Calls on the FDA to Apply Regulatory Flexibility and Accept the NDA Filing for troriluzole
Advocating for Ataxia: My Virtual Experience on Hill Day
