ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
Join NAF and our partners at FARA in advocating for Ataxia and rare disease related policies during our annual United Against Ataxia Hill Day on September 25th! Advocates will have the opportunity to attend virtual meeting with members of congress and their staffers to tell their stories and relay the Read More…
I have Spinocerebellar Ataxia type 2. Also known as SCA2. I was 47 years old when I was diagnosed. I already knew that I had it, because I have a family history of it. My mom had it, her mother had it, my mom’s sisters and one brother all had Read More…
Guest Author: Liam Dougherty Navigating the world of accessible products can be a daunting journey, filled with trial and error. In this article, Liam shares his personal experiences and the philosophy behind founding Day Undefined, a marketplace designed to help disabled individuals find the perfect products tailored to their unique Read More…
Guest Author: Linda Chase, Able Hire In today’s technology-driven world, the importance of tech in career development for individuals with disabilities, such as Ataxia, cannot be overstated. This article delves into various technologies that can be utilized to enhance professional opportunities and achieve career success. It provides insights into how Read More…
Guest Author: Ellie Martin Many people practice yoga for its long-lasting effects on the body. For people with limited mobility, it may be trickier to practice traditional yoga. Fortunately, chair yoga is a great option that provides the same benefits as traditional yoga. Chair yoga is accessible to anyone, even Read More…
Guest Author: Ellie Martin Dogs can be a human’s best friend. I mean, what’s not to love right? Dogs offer companionship, provide mental health support, and help us stay active. They can even help us with our daily tasks. According to the Americans with Disability Act (ADA), service dogs are Read More…
Chapter 1: In the beginning I wasn’t always this way. Growing up the daughter of a military man I can honestly say red, white and blue run through my veins. I love America and my family for years has fought vehemently for this glorious country. Allow me to say here Read More…
My name is Anna Santoro and I am the stay-at-home mom of three boys and the primary caretaker to my mom, who has Ataxia type two. My objective is to share our Ataxia story, raise awareness, and provide other caregivers like myself with management tools to help care for their Read More…
Note: Korkut submitted his story in Turkish. Google Translate was used to translate his submission. The translation may not be accurate. We will include his submission in Turkish, followed by the English translation in italics. My Story Sca ile hayat. Merhaba herkese .oykum su Askere kadar hicbirsey yoktu (24 yas) Read More…
Have you ever wondered what goes on behind the scenes to bring a new drug to market? The process can take a long time. This is because of the many steps required. This is particularly true once human clinical trial participants are involved. In this article, we will explore the Read More…
