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Using a Service Dog for Ataxia

Guest Author: Ellie Martin Dogs can be a human’s best friend. I mean, what’s not to love right?  Dogs offer companionship, provide mental health support, and help us stay active. They can even help us with our daily tasks. According to the Americans with Disability Act (ADA), service dogs are Read More…

Susan Harris

Chapter 1: In the beginning I wasn’t always this way. Growing up the daughter of a military man I can honestly say red, white and blue run through my veins. I love America and my family for years has fought vehemently for this glorious country. Allow me to say here Read More…

Anna Santoro

My name is Anna Santoro and I am the stay-at-home mom of three boys and the primary caretaker to my mom, who has Ataxia type two. My objective is to share our Ataxia story, raise awareness, and provide other caregivers like myself with management tools to help care for their Read More…

Ibrahim Oz

Note: Korkut submitted his story in Turkish. Google Translate was used to translate his submission. The translation may not be accurate. We will include his submission in Turkish, followed by the English translation in italics. My Story Sca ile hayat. Merhaba herkese .oykum su Askere kadar hicbirsey yoktu (24 yas) Read More…

What is an Investigational New Drug (IND) application?

Have you ever wondered what goes on behind the scenes to bring a new drug to market? The process can take a long time. This is because of the many steps required. This is particularly true once human clinical trial participants are involved. In this article, we will explore the Read More…

Benefits of Rehabilitative Services

Guest Author: Ellie Martin According to the World Health Organization, rehabilitation is defined as “a set of interventions designed to optimize functioning and reduce disability in individuals with health conditions in interaction with their environment.” Rehabilitation can help by making everyday activities more enjoyable. Using rehabilitation services is a way Read More…

David Beavan

When I was a teenager I remember my father used to weave a little when he walked. We played a lot of golf, and he often toppled over when he tried to tee up his ball. “Damn middle ear,” he said, and we all nodded in agreement. Back then nobody Read More…

Ataxia Med News – April 2024

This is a periodic newsletter for Ataxia clinicians to keep them up-to-date on patient resources and other medical news. To begin receiving this newsletter, join as a professional member of NAF at www.ataxia.org/JoinNAF. Hello from NAF’s Clinical Services Team Hello Ataxia Health Professionals, As we welcome Spring here in Minnesota, Read More…

Jerry’s Story

I’m actually reluctant to tell my story as it’s far from positive. Currently my tremors are more disabling than my balance issues, which are dreadful. I suppose I noticed things weren’t quite right about 10 years ago. I was diagnosed with Cerebellar Ataxia about 2 years ago, and to be honest Read More…

Accessible Activities in Florida

Are you traveling somewhere? Don’t assume that an activity isn’t accessible! Jessica, who has Ataxia and uses a wheelchair, traveled to the Florida Keys with her parents in June 2023. She went swimming with dolphins, fishing & snorkeling from a boat, and cruising through the Everglades. Read about her experiences Read More…

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