ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
Hereditary Ataxia and Genetic Testing: A Family Affair Original Member Story Published in Generations – Spring 2009 When I was given the diagnosis of “Spinocerebellar Ataxia, type unknown” in 2005 by a local neurologist (based on my neurological exam results, MRI test results which showed cerebellar atrophy and family history), Read More…
I am Spanish, I am 30 years old and I am a carrier of SCA3 ataxia. My grandmother and my aunt died due to the disease and my mother uses a walker. I still have no symptoms but I have infinite concerns and curiosities about my illness. When Were You Read More…
As a child, in the 1969’s-1970’s, I can remember my paternal grandfather walking with a wide, somewhat unbalanced gait. He was born in 1896 in rural Michigan, and never diagnosed with a specific disorder. I just thought his problems were due to normal aging. My father, born in 1924, starting Read More…
Milian’s Journey with Ataxia – Searching for Answers, Hope, and Guidance My wife, Milian, has always been the picture of health—an active yoga practitioner and a strong advocate of mindful living and healthy habits. Never in our lives did we expect that she would be diagnosed with idiopathic cerebellar degeneration Read More…
My Journey with Ataxia: From Despair to Hope A Personal Story of Struggle, Resilience, and Advocacy Ataxia, you took so many beautiful souls from us! It is high time that we put an end to this! It was so disheartening to see how Ataxia took the lives of my loved Read More…
Hello, my name is Ad, I am 62 years old and I live in the Netherlands. I am married with Marina and we have a daughter Dorith. Since September 2023 we have a grandson Matteo. Some 10 years ago I sometimes lost my balance and fell. I had no reason Read More…
Hello my name is Sly. I’m 33 years old. Started to show symptoms at age 21, diagnosed at age 25. Fun fact: before I got diagnosed is that I hiked half Dome in Yosemite. It took me and my family about fifteen hours. When I moved in an apartment with Read More…
I was diagnosed with Gluten Ataxia Disease 2 years ago. I went to every specialist and checked myself into the hospital for tests. I had a brain MRI. Every doctor said I was fine. I was so dizzy 24/7. But no doctor helped me. They said to take anxiety meds. Read More…
Shortly after returning from a once in a lifetime vacation to Turkey in 2010, at age 58, I began to experience odd neurological symptoms and profound exhaustion. I felt like I was bobbing up and down inside as if I were on a boat or as if the pull of Read More…
My name is Neyveth Duarte and my dad was officially diagnosed with Ataxia earlier this year. My dad is my hero and he is going through a really hard time due to his current symptoms. Growing up my dad was a very active man who played baseball for over 3 Read More…
