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National Ataxia Foundation

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Member Stories

Jonathan Zilles

Jonathan Zilles

I’m Jonathan Zilles. I was diagnosed with Friedreich’s Ataxia when I was 11 years old. Life as a kid with Friedreich’s was pretty normal, but I fell down a lot. My symptoms started early and included hand-eye coordination issues. Despite FA, I was fortunate enough to graduate both high school Read More…

Ed Schwartz

Ed Schwartz

My name is Ed Schwartz. I’m co – chairman of “The Western Pennsylvania Ataxia Support Group of the National Ataxia Foundation (NAF). Ataxia is the biggest challenge I have ever had to face in my life. About twenty three years ago I began to fall down in the dark. Then Read More…

Lisa Cole and daughter

Lisa Cole

I wanted to help the NAF and spread awareness about Ataxia. One way I could help support the NAF and also bring about awareness was by having fundraisers. I have two fundraisers per year.  Introducing the NAF to my friends and acquaintances or by telling them to go directly to Read More…

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