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A generous family stepped forward to MATCH THE MATCH for April’s Accelerate! Double the Drive campaign. They contributed an additional $50,000 in memory of Carol Tate, whose legacy continues to inspire hope for families affected by Ataxia. We’re grateful for her family’s continued support of NAF’s mission to accelerate treatment Read More…
Thank you for 15 Years of Chuck and Duck! We guarantee you will get a kick out of this! For the15th year, Charlton Heights Elementary School participants came together to celebrate a former student with Ataxia, raise vital funds for the community, and have a blast doing it (check out those Read More…
We’re proud to announce that we funded 18 research grants for 2025 totaling $730K! For the funding term of March 1, 2025 – February 28, 2026, NAF received 96 Letters of Intent and 33 grant applications. ~50 scientific reviewers scored full applications, assigning a score between 1.0 and 5.0 (1= outstanding) Read More…
Session focused on the importance of funding research and approving new treatments for rare diseases, especially those with no FDA-approved treatment options like Spinocerebellar Ataxia (SCA) Minneapolis, MN (November 19, 2024) – Today the National Ataxia Foundation (NAF) partnered with members of Congress to host an informational meeting for legislators, Read More…
The well-known science educator joins with the National Ataxia Foundation on campaign to build broad understanding of Ataxia, a progressive brain disease that impacts a person’s speech and movement. Minneapolis, MN (September 25, 2024) – Bill Nye, who has helped make science a part of pop culture for a generation Read More…
This designation is important to raising awareness of ataxia, ataxia research, and the search for a cure. Minneapolis, MN (September 20, 2024) – The National Ataxia Foundation (NAF) and the Friedreich’s Ataxia Research Alliance (FARA) are pleased to announce that Congress has once again designated September 25 as National Ataxia Read More…
Bill Nye opens up about his personal connection to Ataxia, a progressive hereditary disease. He lost is father to Ataxia and has many family members who are affected, including his sister and brother. Bill Nye will share a series of 4 short videos to his 23+ million followers on social Read More…
NAF is hiring a full time Community Services Coordinator. This person will play a crucial role in the management and enhancement of the organization’s network of support groups, aiming to improve the quality of life for individuals and families affected by Ataxia. They will oversee support group operations, build and Read More…
Join NAF and our partners at FARA in advocating for Ataxia and rare disease related policies during our annual United Against Ataxia Hill Day on September 25th! Advocates will have the opportunity to attend virtual meeting with members of congress and their staffers to tell their stories and relay the Read More…
NAF Awarded a Record Number of Projects in 2024 18 Studies Funded Totaling $845k Funded! We had our most competitive year ever for Ataxia research grant applications! As a result of the generosity of our donors, NAF was able to fund a record number of Ataxia research grants in 2024! Read More…
