My name is Terrence A Reed Jr, retired U.S. Army. I also served in four combat zones (1 Afghanistan, 3 Iraq). Now that I think back, I think I first noticed while still serving on active duty on Schofield barracks in Hawaii. We did a lot of physical training, and I noticed my hamstrings where always having spasms and it got harder to march in formation. I couldn’t do some of the facing movements but by that time I had enough rank that I didn’t have to march in formation.
About a year and a half ago is when I really noticed that I was feeling signs of the illness. My legs would hurt all the time from just walking to my desk and began to shake more frequently. I was retired from the U.S. Army and completed 2 master’s degrees. I was at the top of my career and what I felt was living my dream life. However, I had a feeling that it would affect me one day. I mean my grandfather, father, brother, Aunts (2), had the same illness.
I finally accepted the fact that I was sick after a year long depression. I quit my 6 figure job in Washington D.C. sold my condo and later returned to my mother’s house. I was already retired from the U.S. Army and had VA benefits anyway. While going through the testing, physical therapy and other VA screening I had enough savings to support myself while not working.
It took a while for me to accept my diagnosis. As a matter of fact, I didn’t want to get out of bed for months. Once I sort of accepted it, I was able to put a couple of things into perspective. Like, being there for my kids, which I never really was able to do. I feel that I have a lot of experience, knowledge and material things that I want to share with them. I feel that I’ve accomplished too much in life for my kids to have less than others.
I make sure that my legs constantly move daily. I constantly use leg air compression machines. I also have a portable steam sauna in my mom’s garage and get constant muscle massages. Doing these things stop a lot of the pain that’s caused by the muscle spasms.
My kids and grandkids give me hope. They make me feel that I need to accomplish several things with them first. I want to leave a mark on them and make a difference in their worlds. I don’t want them feeling less than anyone else like I saw a lot of young “URBAN” kids were.
When Were You Diagnosed? Which Type (If Known)?
While working for the Navy as a civilian, 1 1/2 years ago.
How Has Ataxia Impacted Your Life?
Had to quit working. Luckily, I’m retired from the Army.
What is One Thing You’d Like the People to Know About Ataxia?
We’re still human.
Share Your Advice – How Can Others Support Someone with Ataxia?
Just support us.
What is Your Ataxia Story?
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