The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE
Check out our latest articles to stay-up-to-date on the happenings at NAF and in the Ataxia community. Select a category to see all the blogs available in that category.
Last year, Mike De Rosa Sr. and Ed Brand started the Joint Mission Bataan to Cure Ataxia (JMB). They marched more than 26 miles through the desert to Read More…
Guest Author: Rachel Gaffney, Outreach Specialist at Disability Benefits Help If you have Ataxia, you may experience a variety of challenges. Ataxia can be disabling, and if Read More…
Author: Linda Snider Sidwell, MD, NAF Board Member and Support Group Leader The 2020 Annual Ataxia Conference in Denver, Colorado is going to be a world class Read More…
It can be hard to connect with other people who have Ataxia. NAF has a number of support groups around the country to help you Read More…
Author: Lauren Sormani, NAF Support Group Leader I was diagnosed with Spinocerebellar Ataxia Type 8 in 2017 when I was 21 years old. A few Read More…
Working with your doctor to obtain a diagnosis can be difficult, especially with a rare disease. Medical history, family history, and a neurological evaluation are Read More…
Author: Dana Mauro, NAF Support Group Leader Hi, let’s talk about Ataxia. When my husband, John, was diagnosed with Ataxia, we were desperate for information. Read More…
We’ve been talking a lot lately about Ataxia clinical trials. But what is a clinical trial? Should you sign up to participate when there is Read More…
Author: Joel Sutherland, NAF Development Director Only 26 spots remain in the 2020 Joint Mission Bataan to Cure Ataxia campaign. Would you like to join us? To Read More…
Our members are a community of individuals and families who are united in the fight against Ataxia. Read about their unique Ataxia journeys from their perspectives.
We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
I’ve been living with a genetically acquired Ataxia since birth Read More…
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We do accept guest submissions for our blog; however, we have a few important guidelines. All content must be original (not published elsewhere online) and relevant to the Ataxia community. Submissions should aim to inform, support, or empower those affected by Ataxia, including patients, caregivers, researchers, and advocates.
Here is an example of a guest authored blog: https://www.ataxia.org/6-tips-to-improve-mental-health-while-living-with-ataxia/
If you have an idea you’d like to propose, please feel free to share a brief summary or outline for our team to review. We appreciate your interest in supporting our mission and community! Email us at naf@ataxia.org.
We appreciate your interest in supporting our mission and community!
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