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The Voice of the Patient Report (PDF) for Polyglutamine Ataxias and DRPLA is now available. This report summarizes information from the Externally-Led Patient Focused Drug Read More…
ACE applications are now open through October 15. Join a national network committed to providing high-quality, comprehensive Ataxia care. Apply Now!
Check out our latest articles to stay-up-to-date on the happenings at NAF and in the Ataxia community. Select a category to see all the blogs available in that category.
The Voice of the Patient Report (PDF) for Polyglutamine Ataxias and DRPLA is now available. This report summarizes information from the Externally-Led Patient Focused Drug Read More…

We have been shaken, saddened, and angered by the death of George Floyd here in NAF’s hometown of Minneapolis. We have also been strengthened by the Read More…

Guest Author: Tasha Kaiser, Clinical Research Coordinator, University of Michigan Hello, with a big friendly wave of the Michigan mitten! My name is Tasha Kaiser, Read More…

Author: Joel Sutherland, Development Director Uncertain times? I don’t think so! Granted, we are not sure if summer camps will be open for the kids Read More…

Author: Sue Hagen, Research Services Director I heard a story about a father and his son out on a bike ride who came upon a Read More…

Author: Lori Shogren, NAF Community Program and Services Director The first ever virtual Hill Day on March 18th was a tremendous success! This event was Read More…

Guest Author: Dr. Pravin Khemani Swedish Neuroscience Institute; NAF Medical and Research Advisory Board Member Hi folks! Social distancing is not social disengagement, so please Read More…

We’re excited to announce that NAF will award $940,000 in Ataxia research grants this year! NAF’s Board of Directors approved funding for 25 Ataxia research grants in Read More…

NAF staff will be working remotely until further notice, doing our small part in slowing the spread of the COVID-19 virus. What this means is Read More…
Our members are a community of individuals and families who are united in the fight against Ataxia. Read about their unique Ataxia journeys from their perspectives.
We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.

Saga of a CHAIR Prajakta Samant and Amit Patil When we hear a word “chair”, the first thing that Read More…
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We do accept guest submissions for our blog; however, we have a few important guidelines. All content must be original (not published elsewhere online) and relevant to the Ataxia community. Submissions should aim to inform, support, or empower those affected by Ataxia, including patients, caregivers, researchers, and advocates.
Here is an example of a guest authored blog: https://www.ataxia.org/6-tips-to-improve-mental-health-while-living-with-ataxia/
If you have an idea you’d like to propose, please feel free to share a brief summary or outline for our team to review. We appreciate your interest in supporting our mission and community! Email us at naf@ataxia.org.
We appreciate your interest in supporting our mission and community!
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