The Ataxia Community Comes Together in Orlando April 9–11, 2026 for the Annual Ataxia Conference! LEARN MORE
Check out our latest articles to stay-up-to-date on the happenings at NAF and in the Ataxia community. Select a category to see all the blogs available in that category.
Guest Author: Movement Disorder Policy Coalition Movement disorders such as Ataxia, Parkinson’s, Huntington’s, and tardive dyskinesia can affect every aspect of a person’s life. That Read More…
Pre-competitive pharma industry consortium looks to accelerate development of treatments for Ataxia The National Ataxia Foundation (NAF) announced today the launch of the NAF Drug Read More…
Author: Mary Ann Peterson, NAF Research Associate Many feel powerless when they are first diagnosed with Ataxia. Brain donation gives the donor and family the Read More…
Author: Joel Sutherland, Development Director Mark your calendar for Saturday, October 3rd beginning at 1:00pm EDT for the 2020 National Ataxia Foundation Virtual Walk N’ Roll. Read More…
NAF and FARA held our second Hill Day on Thursday, September 10, 2020! The event raised awareness about Ataxia and supported legislation that directly impacts our Read More…
Author: Lori Shogren, Community Program and Services Director A Note About the 2021 Annual Ataxia Conference We know how valuable it is for those living Read More…
Guest Author: Amber Trzeciak, Cadent Therapeutics Clinical trial phases can be a confusing concept to understand. The purpose of clinical trials is to determine how Read More…
The Voice of the Patient Report (PDF) for Polyglutamine Ataxias and DRPLA is now available. This report summarizes information from the Externally-Led Patient Focused Drug Read More…
We have been shaken, saddened, and angered by the death of George Floyd here in NAF’s hometown of Minneapolis. We have also been strengthened by the Read More…
Our members are a community of individuals and families who are united in the fight against Ataxia. Read about their unique Ataxia journeys from their perspectives.
We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
My Ataxia journey began in 1978, following a three-month coma Read More…
I’ve been living with a genetically acquired Ataxia since birth Read More…
Thank you for your interest in contributing content to our website!
We do accept guest submissions for our blog; however, we have a few important guidelines. All content must be original (not published elsewhere online) and relevant to the Ataxia community. Submissions should aim to inform, support, or empower those affected by Ataxia, including patients, caregivers, researchers, and advocates.
Here is an example of a guest authored blog: https://www.ataxia.org/6-tips-to-improve-mental-health-while-living-with-ataxia/
If you have an idea you’d like to propose, please feel free to share a brief summary or outline for our team to review. We appreciate your interest in supporting our mission and community! Email us at naf@ataxia.org.
We appreciate your interest in supporting our mission and community!
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