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NAF Blog

Recent news and articles keeping the Ataxia community informed.

Check out our latest articles to stay-up-to-date on the happenings at NAF and in the Ataxia community. Select a category to see all the blogs available in that category.

2020 Ataxia Hill Day

NAF and FARA held our second Hill Day on Thursday, September 10, 2020! The event raised awareness about Ataxia and supported legislation that directly impacts our Read More…

2021 AAC Is Going Virtual

Author: Lori Shogren, Community Program and Services Director A Note About the 2021 Annual Ataxia Conference We know how valuable it is for those living Read More…

EL-PFDD Meeting

The Voice of the Patient Report (PDF) for Polyglutamine Ataxias and DRPLA is now available. This report summarizes information from the Externally-Led Patient Focused Drug Read More…

Member Stories

Our members are a community of individuals and families who are united in the fight against Ataxia. Read about their unique Ataxia journeys from their perspectives. 

We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community. 

Write a Guest Blog for NAF

Thank you for your interest in contributing content to our website! 

We do accept guest submissions for our blog; however, we have a few important guidelines. All content must be original (not published elsewhere online) and relevant to the Ataxia community. Submissions should aim to inform, support, or empower those affected by Ataxia, including patients, caregivers, researchers, and advocates. 

Here is an example of a guest authored blog: https://www.ataxia.org/6-tips-to-improve-mental-health-while-living-with-ataxia/ 

If you have an idea you’d like to propose, please feel free to share a brief summary or outline for our team to review. We appreciate your interest in supporting our mission and community! Email us at naf@ataxia.org.

We appreciate your interest in supporting our mission and community! 

Benefits to Guest Writers

We offer the following benefits to guest writers on our blog:

  • Your byline at the beginning of the article.
  • A short bio at the end of each article with a picture (if you’d like). Links to a personal site or blog are welcomed in your bio.
  • Promotion of your article to the Ataxia community via social media and our member newsletter.
  •  Experience writing for a national non-profit with an international audience.

Expectations of Guest Writers

The following are editorial standards for blogs posted on our website:

  • All works must be original content – they cannot be published anywhere else online.
  • Topics must be of interest to the Ataxia community.
  • Writing style should be conversational, with short, clear sentences.
  • Article should use short paragraphs, subheadings, and bullet lists (when applicable) for readability.
  • There is no set minimum or maximum word count, but at least 300 words is recommended. Posts with 1,000-1,500 words tend to perform best.
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