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Christian Lopez Trenche

MIRACLE OF LIFE While it’s true that man’s worst enemy has for many years been war, the war I laugh at is the war of haste—like the rush of the newspapers or the out-of-bound cars that transit our streets and become “murderers” of our own destiny. Today, even as technology Read More…

Brenda C

As a 28-year veteran special education teacher at Vandercook Lake Public Schools, I was looking forward to retiring in 2018. I had plans on working part time, gardening, camping, sewing, quilting and volunteering. Shortly after I retired, I began having difficulty hearing, sweating profusely, becoming easily fatigued, and easily frustrated. Read More…

Eric Petit

I was diagnosed ataxia in October 2021 at 60 years old The ataxia I am impacted is SCA2 This ataxia is well known in my family since several family members and also my father were impacted by this disease When the analysis confirmed ataxia SCA2,I stopped working My physical fitness Read More…

Brian G

Back in October of 2024 I was managing a hotel restaurant and came down 2 steps and just kept going without the ability to stop. I finally slammed into a stone wall and sank to the floor. I knew that in the back of my mind I was thinking that Read More…

Face of Ataxia Research: Marija Cvetanovic, PhD

Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: Molecular mechanisms and consequences of Purkinje Read More…

Cynthia Thibodeaux

I spent 10 yrs with a Dr who thought I had MS. After a visit to Mayo clinic in MN, I was told no MS, probable CANVAS. I was put on long term disability from my job as soon as I started walking with a bad gait. In the refinery Read More…

Faces of Ataxia Research: Hannah Shorrock, PhD

Written by Celeste Suart Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: A CAG expansion-selective small molecule screen Read More…

Marina Parker

Oh boy, where do I start? At the beginning I guess…following neck surgery I developed a 4cm abscess on my left prefrontal cortex. I had no symptoms of this abscess until it ruptured. I thought someone shot me in the head. Things get very hazy after this…I remember light hurting Read More…

Faces of Ataxia Research: Hayley McLoughlin, PhD

Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project titles: Research Seed Money Grant (2023-2024): “Mapping Read More…

Freyglee Borges

I am from Venezuela, South America, I am 24 years old and living a “normal life” studying at university. My Ataxia is quite rare. I got sick 5 years ago, something viral that later turned into something neurological, many tests and still no exact diagnosis. I know it affected my Read More…

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