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Oh boy, where do I start? At the beginning I guess…following neck surgery I developed a 4cm abscess on my left prefrontal cortex. I had no symptoms of this abscess until it ruptured. I thought someone shot me in the head. Things get very hazy after this…I remember light hurting Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project titles: Research Seed Money Grant (2023-2024): “Mapping Read More…
I am from Venezuela, South America, I am 24 years old and living a “normal life” studying at university. My Ataxia is quite rare. I got sick 5 years ago, something viral that later turned into something neurological, many tests and still no exact diagnosis. I know it affected my Read More…
Written by Celeste Suart, PhD. Edited by the National Ataxia Foundation Research Team Our annual Katie Campbell CRC-SCA Face-to-Face Meeting was held this year from November 10-12, in Bloomington, Minnesota. This meeting focused on logistics and discussion of the ongoing Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC-SCA) Natural History Study. The CRC-SCA is Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: Diverse Scientists in Ataxia Predoctoral Fellowship Read More…
My name is Cameron Dingerson, and I have a rare form of spinocerebellar ataxia: SCA11. The impetus for me sharing my story is the upcoming premiere of The Thirteenth Olympian, which is an original musical theater production solely written by myself and developed over the past seven years. The Thirteenth Read More…
Written by Victoria Martinez Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: Pioneer SCA Translational Award (2019): “Mechanisms Read More…
Todo empezó a los 9 años cuando estaba en el colegio y la profesora y mi mamá se empezaron a dar cuenta que levantaba los brazos lateralmente para caminar y buscar equilibrio y también caminaba en punta me recuerdo que decían que caminaba como un pingüino en ese momento mi Read More…
When the FDA issues a Complete Response Letter (CRL), it can be an emotional moment for individuals and families who are eager for progress in Ataxia research and treatment. A CRL means the FDA has completed its review and determined that the application cannot be approved in its current form. Read More…
Written by Taylor Stolberg Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to effective treatments and a cure for Ataxia. Meet the Researcher Project title: Pre-Doctoral Fellowship to Promote Diversity in Read More…
