I got diagnosed at 40 after always walking awkward and 2 years of being unsteady. Now I’m going to start physical therapy and apply for SSDI. It’s sad for me, I have 2 little ones but I know God will see me through.
When Were You Diagnosed? Which Type (If Known)?
Autosomal Recessive Spastic Ataxia
How Has Ataxia Impacted Your Life?
I’m slowly moving and fell a lot before the cane.
What is One Thing You’d Like the People to Know About Ataxia?
We try our best.
Share Your Advice – How Can Others Support Someone with Ataxia?
Let them cry and tell them they are doing great. Encourage them to keep going.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Recent Member Stories
Cameron Dingerson
My name is Cameron Dingerson, and I have a rare form of spinocerebellar ataxia: SCA11. The impetus for me sharing my story is the upcoming Read More…
Valentina
Todo empezó a los 9 años cuando estaba en el colegio y la profesora y mi mamá se empezaron a dar cuenta que levantaba los Read More…
Denny
My name is Denny and I am 71 years old living in a small town in Northern Minnesota. I have had a diagnosis of Ataxia Read More…
Liliana Haefliger
One day, about 25 years ago, I suddenly saw double after the second sip of white wine. Then I started seeing double not only when Read More…
Dušan Stojanovich
“His Light Endures”: Honoring Dušan Through Art and Advocacy By Dr. Nanette Presswell My partner Dušan was an extraordinary person—deeply creative, endlessly curious, and full Read More…
Marius
My Ataxia Journey: Sailing Uncharted Waters My name is Marius, and I live in Romania. I’m 64 years old, and I’ve always been an active, Read More…
