I got diagnosed at 40 after always walking awkward and 2 years of being unsteady. Now I’m going to start physical therapy and apply for SSDI. It’s sad for me, I have 2 little ones but I know God will see me through.
When Were You Diagnosed? Which Type (If Known)?
Autosomal Recessive Spastic Ataxia
How Has Ataxia Impacted Your Life?
I’m slowly moving and fell a lot before the cane.
What is One Thing You’d Like the People to Know About Ataxia?
We try our best.
Share Your Advice – How Can Others Support Someone with Ataxia?
Let them cry and tell them they are doing great. Encourage them to keep going.
What is Your Ataxia Story?
As an organization dedicated to improving the lives of those affected by Ataxia, we believe that each story has the power to inspire, connect, and empower others. We invite you to share your personal Ataxia journey with us.
Are you here to read the personal stories, but haven’t yet joined as a member? We hope you find comfort in reading about the experiences of others on their Ataxia journey. We invite you to join as a member to receive a new member story each month. It’s free, and you’ll be kept up-to-date on the latest developments in the Ataxia community.
Recent Member Stories
Debbie Pinkston
Ataxia is a family problem. It affects the individual diagnosed of course, but encompasses the rest of the family as caregivers, and those who must Read More…
Lisa Jockims
My name is Lisa Jockims. I am 56 years old and I live in Saskatoon, Saskatchewan Canada. I have been recently diagnosed with Ataxia Telangiectasia. Read More…
Christina Rakshys
Hereditary Ataxia and Genetic Testing: A Family Affair Original Member Story Published in Generations – Spring 2009 When I was given the diagnosis of “Spinocerebellar Read More…
Mika
I am Spanish, I am 30 years old and I am a carrier of SCA3 ataxia. My grandmother and my aunt died due to the Read More…
Karen W
As a child, in the 1969’s-1970’s, I can remember my paternal grandfather walking with a wide, somewhat unbalanced gait. He was born in 1896 in Read More…
Robin C. Lee
Milian’s Journey with Ataxia – Searching for Answers, Hope, and Guidance My wife, Milian, has always been the picture of health—an active yoga practitioner and Read More…
